Tuesday, March 10, 2009

Tysabri answers and other randomness

Someone asked in my comments if I had any unusual responses to my Tysabri infusions. The answer, for the most part, is no. I have had no reaction to the drug while it was being administered as some patients do with itching or a feeling of coldness. I just really enjoy sitting in my chair and watching the good cable. (Remember I have only the most basic of cable, along with Netflix.)

I can't remember both things the poster asked but one of them was about worsening depression. Well, I already have depression and take medications (yes, plural- medications) and I don't notice anything worsening in that arena after an infusion. As a matter of fact, I've been feeling better lately, in part I believe to the arrival of some sunshine in my neck of the woods.

I wish I remembered your second part of the question. I'll blame this on the MS that I can't recall what else you asked. It might have been about running a fever but I do that on a regular basis. Taking my temperature at home can run anywhere from 98.6ish to 100.7 degrees. Sometimes I just feel hot and lousy and boom my temperature is up.

The main thing I get from the Tysabri is a backache and some tiredness and fatigue a day or two after my infusion. The backache can last a few days as it has this time. I just had infusion #6 and this is the longest my backache has ever lasted. I haven't taken any meds for it but just have noticed it has more "staying power" this time.

I hope that was helpful to my one dear reader who asked about the Tysabri. If it wasn't, comment again and I'll do what I can to help you out.

Other randomness...

My 20th high school reunion is coming up. It sounds like fun but I am just so fat that I don't see myself struggling into some Spanx and some sort of giant outfit to go and watch everyone else drink. I can't drink and there's no one for me to go with and talk to like my wasband. I'm actually quite shy in reality and I don't want to be out with everyone feeling alone and as if everyone has noticed that I am now one of the fat girls when I used to be one of the skinny girls in high school. Sigh...

It looks like the scale has moved down another half pound but then I ordered pizza tonight. It wasn't a small one either. There's plenty left but the saddest part is I ordered it when I was super hungry and it didn't really have much taste to it. I ate so quickly and was so enamored with the way it was portrayed on TV that I might as well have eaten really expensive cardboard. Sigh...

I have been in touch with a high school classmate, SMS, who may or may not be actually reading this at some time. If he does, hello to you SMS. There's your shout out and it was painless, wasn't it?

2 comments:

Stuff could always be worse said...

I now wish I had went to my 20th high school reunion but I am shy also and didn't want people to see me in a wheelchair. Now I have come to peace with the chair, wishing I had went.

Weeble Girl said...

I'm considering going. I need to get over this ridiculous idea that just because I'm fat, everyone will shout it out and run the other way.

Thanks for putting this in perspective.
Weebs