Yesterday was all about the beginning of my life with multiple sclerosis. Today's writing will be about my life with MS now. I am doing much better with it. I've been diagnosed since December 2005, seriously ill with it since December 2004. Looking back I can see signs of it before even then. I was always seriously fatigued, even going back as far as high school when I should have been full of vim and vigor.
There's lots of little things that connected the dots to the diagnosis of 2005. Severe pain and weakness in my arms thought to be carpal tunnel syndrome, falling down when I tried to maneuver a curb at the mall with my friend BJM. Cramps and twitches during and after my running.
Then came three days in the hospital and a final diagnosis.
Since then I do not spend all my extra time on MSworld.org searching through posts. As a matter of fact, I stopped by the other day for the first time in about 4 months! Now I do spend time reading some of my favorite blogs written by fellow MSers. And there are lots of blogs out there, trust me.
My family recognizes the MS now. As a matter of fact, my mom wants me to move into an old folk's home so I can live without stairs. There are lots of stairs where I live now. (I'm not moving in yet!)
I now take a medicine called Tysabri which is a once every four weeks IV regimen. I call it my tune up. I have no site reactions or post injection reactions like I did with the shots that I started with a few years ago.
I'd like to write more on this but I am feeling tired so I'll end this for now. More to come, I promise.
2 comments:
we know you are really on Facebook all day LOL. Oops ! that means i'm there with ya !
I too hang out in the blog world. It's far more informative and entertaining for me.
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