Saturday, September 6, 2008

Random bits

First off, it's the weekend so don't expect much, ergo the random bits title for today's post.

1.) I have changed my "photo" to a more accurate representation of what I look like and to revive the weeble idea of the 70s. It's also a nice way of staying somewhat incognito from any powerful and influential persons that may stumble across this blog or a random family member who would cuss me out and let me know that I am still one of the lowest forms of life on the planet.

2.) I am letting the Tysabri wheel whirl ever onward or fall flat to the ground, as it may. I am taking a Ty phone call-a-thon rest for several days. People can just call me if there is to be any progress. No calls means less money I'm spending on future infusions, right?

3.) I'm going to look a little more deeply into the HiCy process available at Johns Hopkins. It's pricey but I hear that some insurances will pay most of the price. I've heard a price tag of about 30 grand or so but you also have to travel there a few times and pay to stay close by during treatment.

4.) I'm also looking into bariatric surgery = surgery for really fat people to get their digestive tract altered so they can malabsorb food and lose large amounts of weight. I am fat, disgustingly fat, life-alteringly fat and I am certain that it makes the MS even more of a burden for me. Plus, I am so tired of feeling unhappy in my skin with the mirror check. I don't want to be 110 pounds again but I need to be way below where I am now for health reasons, not just vanity.

5.) If you're a person with MS (and even if you're not), please check out some of the blogs listed on the right. It seems like I run across at least one new blog a week. It amazes me how I won't read posts for several days, then I'll write my own post, and peruse blogs later to see that someone else has written about the same thing I have. Spooky.

6.) Depression sucks. MS sucks.


Mandy Crest said...


Weeble Girl said...

Thank you, Mandy!

Denver Refashionista said...

I've been a little depressed too lately. Hang in there. Also, don't be so hard on yourself :)