Monday, October 12, 2009

Happy anniversary to me!

Today makes 13 infusions and one year of successful Tysabri treatment! Woo Woo!!

I lucked out and had school off thanks to Queen Isabella so I didn't have to take any more time off for this month. I did take Friday off as a whole day for a different medical appointment. I also had another med checkup today after my Tysabri.

It was a busy day, all in all.

How do I like the Tysabri? I love it. The worst part is having to take off time to have it infused. The best part is that it's once a month, four seconds worth of an IV stick, I get to watch good cable, and I feeeeeeeeeeel better.

I feel so much better than I did a year ago. Last year I had terribly weak and painful arms. I had horrid fatigue and issues with severe depression. I was losing my train of thought as I was teaching. I was, in a word, a mess.

Now I feel like I am living a different life. Tysabri has been in me for a year now working its magic. I am still tired and I need a lot of sleep but I go to bed early to get up early. I take my Provigil and that helps keep me puttering along during the day. I take my morning med menagerie and off to work I go with some pep in my step.

I am mostly on top of my paper work and my grades. More on top of things than usual, I'd say. I'm happy most of the time. I smile. I joke and laugh with the kids. I don't let things stress me out as much. I do have some issues with my eyesight lately but they are pretty much benign. I sometimes lose clarity and everything blurs together. If I work my eyeballs right then I can see enough to get by until all is clear again. This only lasts for a short while so it's not worth a call to the neuro yet. I'm keeping watch on it, tongue in cheek.

So happy anniversary to me and to Tysabri. It's been a wild ride.

1 comment:

Amy Shaw said...

I'm so happy to read that you are doing well. I think of you often and am sending good thoughts your way.