It's been awhile since I've visited here and posted, so here I am with an update.
Scrapbooking was so much fun. I was there with some friends and ran into another high school classmate. I finished 11 pages, if I remember correctly. I learned how to use vellum splits to adhere those cutesy vellum quotes to my page. It was all around a great day and nice to be out of the house doing something just for me!
The MS Walk is on May 2nd and I have already personally raised $1200 just with online donations so far. I have another $100+ in cash and check donations and I will be holding a raffle at school soon. I plan to raffle off some chocolate, a Tastefully Simple pound cake mix and one of their brand-spanking-new watermelon margarita mixes. I hope to make another fifty dollars or so off that.
The crazy thing is that my whole team goal was $1200 so we have already beaten that! I have a confirmed team of 6 other members with a possible 3-5 more people joining us. I think we are also going to have T-shirts made up with our Team Weeble name on them.
Someone asked how I am able to do this, the exercising and the upcoming walk. The answer is that I am truly in a remission state right now. I have very little active symptoms outside of fatigue and some urinary frequency which are dealt with through meds, and also some cramps in my legs now and then.
I feel good exercising. I see changes in my body, my shape, and my muscles. I have lost weight and I am starting to make some better food choices with fresh pineapple being my top change. It tastes so good; who knew? I guess the people at Dole did.
I still have a long way to go with the weight loss. I am not deluding myself into thinking that I am all fixed. I have lots of work to do but for the first time in a long time it seems... almost manageable. For once I can push the MS diagnosis to the side and work on me without *that* getting in the way.
There was a long period of time when I couldn't do that and that was just a year ago. What a difference a year can make. It's hard to ride out the symptoms sometimes with MS. I have been blessed with good health at this time and I am going to make the most of it. I am going to keep walking, dancing, and boxing the heck out of MS. Score one for me and zero for MS.
I hope your symptoms wane and become manageable too.
Weebs :)
A beginner's blog about an early 40-something female who's divorced, a teacher, and has MS (multiple sclerosis) and diabetes. The Messy Stuff in life will be exposed to the sunlight, making it less important and allowing our trusty blogger to enjoy life more.
Showing posts with label elation. Show all posts
Showing posts with label elation. Show all posts
Saturday, March 20, 2010
Tuesday, September 9, 2008
Tomorrow is my widget counter birthday AND I may have some good news
Tomorrow is the official one month birthday mark of my little widget counter at the bottom of the page. Now I know blogging isn't about how many people read your stuff but I must admit that I am always bedazzled that anyone reads this drivel at all. And someone does because I only have about two friends who read this regularly and we've already established my family's view on my writing (stupid, waste of time, never get you anywhere) so we know they aren't reading this either.
So my deepest and most divine thank you's from the bottom of my wizened old heart to each and every cyber angel that comes to visit and then gets their cyber-wings at last! (In case that made no sense, that was a reference to a famous Christmas movie whose title is on the tip of my MS tongue, just out of reach.)
And shhhh... I'm gonna tell you a secret. Lean in close. Closer. Look around and make sure no one else is watching you.
(** Super sensitive secret material** I have procured an appointment with a new neurologist of my choice who offers Tysabri more than one day a month. I actually talked to their office today and they are sending me a bundle of paperwork to do in advance of my appointment with them next week!!!!! They also asked me to bring any films or discs of my MRIs with me so that the neurologist could look at them.
OMG! A doctor who looks at these super ridiculous pricey MRI materials instead of just reading the radiologist's report, can you believe that? And, get this, the office lady said I could see the P.A. or alternate between the the P.A. and the neuro, or thisisflippingunbelievable here, I could just see the neuro.
I am dancing and humming Christmas carols, my friends. With a smile on my face. Nothing is stopping this Flashdance moment. I feel on top of the highest mountain looking around and finally seeing some sunshine.
Free at last, free at last, I will be rid of Neuro #4 soon enough and that, dear readers, has brought me to the mountain top.
So my deepest and most divine thank you's from the bottom of my wizened old heart to each and every cyber angel that comes to visit and then gets their cyber-wings at last! (In case that made no sense, that was a reference to a famous Christmas movie whose title is on the tip of my MS tongue, just out of reach.)
And shhhh... I'm gonna tell you a secret. Lean in close. Closer. Look around and make sure no one else is watching you.
(** Super sensitive secret material** I have procured an appointment with a new neurologist of my choice who offers Tysabri more than one day a month. I actually talked to their office today and they are sending me a bundle of paperwork to do in advance of my appointment with them next week!!!!! They also asked me to bring any films or discs of my MRIs with me so that the neurologist could look at them.
OMG! A doctor who looks at these super ridiculous pricey MRI materials instead of just reading the radiologist's report, can you believe that? And, get this, the office lady said I could see the P.A. or alternate between the the P.A. and the neuro, or thisisflippingunbelievable here, I could just see the neuro.
I am dancing and humming Christmas carols, my friends. With a smile on my face. Nothing is stopping this Flashdance moment. I feel on top of the highest mountain looking around and finally seeing some sunshine.
Free at last, free at last, I will be rid of Neuro #4 soon enough and that, dear readers, has brought me to the mountain top.
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